tag:blogger.com,1999:blog-16825229.post1039909669493591609..comments2023-11-05T01:20:41.116-07:00Comments on gwendomama: The Assessment: Part 2Unknownnoreply@blogger.comBlogger16125tag:blogger.com,1999:blog-16825229.post-36791054247752556212008-10-06T23:09:00.000-07:002008-10-06T23:09:00.000-07:00SUCH a cute kid!SUCH a cute kid!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16825229.post-10581907859898059972008-10-06T06:22:00.000-07:002008-10-06T06:22:00.000-07:00*HUGS* to you! I'm glad that you got a diagnosis- ...*HUGS* to you! I'm glad that you got a diagnosis- I was once diagnosed with a rather unsavory mental disorder, and shocked and appalled because I didn't think I was THAT bad, but my shrink explained it as, the diagnosis tells them what approach will work the best. The diagnosis is NOT the answer- the TREATMENT is. <BR/><BR/>He sounds a lot like one of my friend's kids, who at the age of FOUR said her first intelligble sentence- they were watching Harry Potter and she says, clear as a bell, "Harry Potter does magic!" Before that she had just strung together words like your example above. After that, it was like it just clicked and you can't shut the kid up. Even that one video of Bubbles freaking out over the frog being stuck, would have been totally beyond her. So this is totally fixable and I really think you guys are gonna do great, because you have SUCH a good handle on it and you got him the help he needed so early and you appear to have such wonderful people working with you.RoseRedHoofbeatshttps://www.blogger.com/profile/03785259256890802841noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-80215724840741124742008-10-05T08:23:00.000-07:002008-10-05T08:23:00.000-07:00Why, oh why did my big long response have to disap...Why, oh why did my big long response have to disappear?! Argh.<BR/>Anyway, I'm totally understanding how you felt hearing the diagnosis. I was never really able to describe just how I felt when we finally got our autism diagnosis. I didn't really feel any different at first, to be honest, though in the back of my head the voices were chatting up all the worries. <BR/>But this is a very good thing in terms of services. Keep us posted on how that all pans out.<BR/>Going into preschool through the district was awesome for Miles at three. Of course, that all changed when we moved here, but that's a whole 'nother can 'o worms!<BR/>Big hugs.Mama Debhttps://www.blogger.com/profile/08381495916734086130noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-39821411344985295682008-10-04T14:41:00.000-07:002008-10-04T14:41:00.000-07:00That picture says so fucking much. I'm sorry. Wh...That picture says so fucking much. I'm sorry. When we got the diagnosis of the FRCZS I was the same way--I'd known ever since I Googled the name of the syndrome on the Post-It note from the doctor's office that my soon-to-be-ex handed me that that was me, that was my kids, that was US, but the night after the geneticist's appointment where I held it together and asked intelligent questions and presented an organized collection of pertinent information I PITCHED A WALL-EYED FIT and blogged it all out and...dang. If it's any consolation at all I had no hope whatsoever going into the school year that my 4-year-old would EVER be mainstreamable but a month in the teachers seem sweetly confused as to why exactly we had any doubts and the educational therapist is effusive in her praises of the child's progress and NEVER underestimate the power of peer pressure :) I think Bubbs will be fine. He's got you as his mama and there's obviously a lot going on in that sweet little duck-fluff-covered head of his :)Elizahttps://www.blogger.com/profile/13788282464956879318noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-31699955749484551962008-10-04T10:36:00.000-07:002008-10-04T10:36:00.000-07:00Hello Gwendomama, listen, you are obviously a wond...Hello Gwendomama, listen, you are obviously a wonderful mother - I just know Mr. Bubbles will be fine- because 1. he has an older sister who was probably alot more verbal at this age and that's nervewracking for any mom, 2. Bubbles does not sound very shy- which is helpful because if he wants water/anything and he can't say it he'll point and try and get it... <BR/>3. he is making his needs known verbally- even if he can't articulate very well at this point- this is a HUGE indicator that he will be okay. I'm just saying, don't be shocked if later in life he's a linguist :-)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16825229.post-63856829483502728172008-10-04T09:42:00.000-07:002008-10-04T09:42:00.000-07:00I am sorry to hear of the diagnosis, but glad, too...I am sorry to hear of the diagnosis, but glad, too, if the label will get him better services. Hugs, Anita R.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16825229.post-7937670972851536412008-10-04T06:17:00.000-07:002008-10-04T06:17:00.000-07:00Oh, that's scary. But good. It's good to know what...Oh, that's scary. But good. It's good to know what you're dealing with.<BR/><BR/>We're rooting for your shining blonde boy down here!<BR/><BR/>Also, that picture kinda looked like you let Bubbles play in traffic. Then I realized the bus is parked. I am SO QUICK.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16825229.post-68367173328012308002008-10-04T06:12:00.000-07:002008-10-04T06:12:00.000-07:00Hugs to you and Bubbles. He's a sweet special boy...Hugs to you and Bubbles. He's a sweet special boy with so much love around him. He'll be able to soar through this and land just fine.Heatherhttps://www.blogger.com/profile/09041926411716116094noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-46255445466911990792008-10-04T05:43:00.000-07:002008-10-04T05:43:00.000-07:00This comment has been removed by the author.Katehttps://www.blogger.com/profile/09707629179642444026noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-57428690475963210852008-10-03T18:44:00.000-07:002008-10-03T18:44:00.000-07:00Hi Anon;While I DO appreciate the positive spin on...Hi Anon;<BR/>While I DO appreciate the positive spin on it, I have to say that the sentences I posted today are newly emergent skills.<BR/>Also, when I mentioned that most of his words were unintelligible to most people, I was not exaggerating.<BR/>For instance, this:<BR/>'Birds fly fly fly fly! Mama! Fire truck! The bus, the BUS THE BUS!!! Nother cars! I want juice box, pleeeeeeeeease!'<BR/>would actually sound more like this:<BR/>Burr fiy fiy fiy fiy...mama! Fiy TUCK! Da bus, da pus, da BUS! Nunna cahs! I. wan. juuu. boss. meeeeeeeeeeeese!'<BR/><BR/>I think he will be fine too, but I can't underestimate the amount of help it will probably take to get him there.gwendomamahttps://www.blogger.com/profile/08439664476465264089noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-29691497563525700742008-10-03T18:19:00.000-07:002008-10-03T18:19:00.000-07:00Now that I think about it, I'm unclear what Bubble...Now that I think about it, I'm unclear what Bubbles age is, but my comment still holds true...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-16825229.post-77620401586191257202008-10-03T18:17:00.000-07:002008-10-03T18:17:00.000-07:00Gwendolyn, don't mean to put a positive spin on th...Gwendolyn, don't mean to put a positive spin on this, but he sounds like such a NORMAL boy verbally- OFTEN they can follow directions very well, but can't articulate what they want to say- even to the age of 3- in fact, it sounds like Bubbles is able to communicate pretty well from your descriptions- esp. for being under 3. Being a mama of 3 boys (and working in the therapy realm), I have to say, I have a superstrong feeling your boy's gonna be JUST fine! But, you are a very responsible and involved mom so you will ensure this will happen. Best of luckAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-16825229.post-35741102326240880662008-10-03T17:11:00.000-07:002008-10-03T17:11:00.000-07:00that inner voice is sometimes SOO annoying. all y...that inner voice is sometimes SOO annoying. all you want to do is whine and wallow and feel sorry for yourself or the situation, and the stupid inner voice with it's REASON and RATIONAL(ity? is it rationality?) is annoying.<BR/><BR/>imagining that inner voice tied up in a chair with duct tape over its mouth doesn't do anything, either.<BR/><BR/>totally annoying. <BR/><BR/>heres to hope =)<BR/><BR/>oh, and i have no idea where i found your blog.Yohttps://www.blogger.com/profile/14515522021380382847noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-42254470482031381472008-10-03T16:33:00.000-07:002008-10-03T16:33:00.000-07:00With you and your fierce advocate knowledge at his...With you and your fierce advocate knowledge at his back and the happy inclusive attitudes you've described at the neighborhood schools, he will be set during the most tender and critical next stages of language development. <BR/><BR/>That you know this already doesn't make it any easier.<BR/><BR/>As always, thank you for telling it like it ought to be told. And for sharing even when you're torn up inside.<BR/><BR/>Love,Shannon Des Roches Rosahttps://www.blogger.com/profile/18057806553670980068noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-47912626517629186192008-10-03T15:38:00.000-07:002008-10-03T15:38:00.000-07:00I am so glad you were able to get an accurate asse...I am so glad you were able to get an accurate assessment! I hope now he is able to get all the help he needs!plaidshoeshttps://www.blogger.com/profile/16142207220763458093noreply@blogger.comtag:blogger.com,1999:blog-16825229.post-53835678709574505502008-10-03T15:17:00.000-07:002008-10-03T15:17:00.000-07:00Oh I think you have captured the essence of every ...Oh I think you have captured the essence of every loving mother's reaction to an assessment. Sigh.Leightongirlhttps://www.blogger.com/profile/01995668005241526484noreply@blogger.com