Thursday, January 07, 2010

Bubbles and Apraxia, continued

Today Bubbles asked me to sing a song to him and I didn't know what song. He kept gesticulating dramatically saying, "Blue skies!! Rainbows!! You gotta sing it like that!!" and apparently the blue skies and rainbows song which I know is the wrong one.
Finally he said, "I am trying to tell you the song but my words aren't working. They all tangled up!"
"Your words are tangled up??" I repeated, because he has said his words were not working before but this was a new one.
"Yes, my words is tangled up in my throat with string. The string is all tangled up."
This statement amazed both myself and his speech therapist, who thought it the most accurate description of what it is like to live with Apraxia and the word retrieval and other frustrating components of it.
His ability to describe the frustration is so articulate that it's almost counter-intuitive to the affliction!!


Just Breathe said...

That is really something, what an amazing discription he had.

Anonymous said...

Bubbles is amazing. What a wonderful kid :-)

furiousBall said...

that's really neat.

did you sing for him or did you claim you couldn't because you can only work union clubs?

Linda said...

I love Bubbles. What an amazing boy he is. It has to be very frustrating for him to be "tangled up"... because he is so damn smart.
Please give him a big squeeze for me!

Gretchen W. said...

As a mother of a 4-year-old with apraxia, it's interesting to hear what it's like from their point of view. Cooper often tells me..."I say it one time" when I ask him to repeat whatever I didn't understand.

SongMom said...

I love that Bubbles thinks (and speaks) in metaphor. The boy is a poet.

Tracey - Just Another Mommy Blog said...

That's amazing!

Astarte said...

Wow! He's very astute!

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